{"id":175,"date":"2018-08-28T15:24:47","date_gmt":"2018-08-28T13:24:47","guid":{"rendered":"https:\/\/www.pediatrics.cz\/sekce\/sekce-nefrologicka\/aktuality\/"},"modified":"2023-10-27T19:38:22","modified_gmt":"2023-10-27T17:38:22","slug":"aktuality","status":"publish","type":"page","link":"https:\/\/www.pediatrics.cz\/sekce-a-pracovni-skupiny\/sekce-nefrologicka\/aktuality\/","title":{"rendered":"Aktuality"},"content":{"rendered":"\n
T\u00fdmov\u00e1 spolupr\u00e1ce \u2013 z\u00e1klad \u00fasp\u011bchu<\/strong><\/h5>\n\n\n\n

Dne 9. srpna 2023 se uskute\u010dnila ve Fakultn\u00ed nemocnici Motol \u00fasp\u011b\u0161n\u00e1 transplantace ledviny od \u017eiv\u00e9ho d\u00e1rce (maminky) u 4let\u00e9 d\u00edvky dlouhodob\u011b l\u00e9\u010den\u00e9 pro termin\u00e1ln\u00ed selh\u00e1n\u00ed ledvin v d\u016fsledku prim\u00e1rn\u00ed hyperoxalurie 1. typu. Pacientka byla doposud v p\u00e9\u010di MUDr. Viktora Janka, jen\u017e p\u016fsob\u00ed v Centru elimina\u010dn\u00edch metod Medimpax v Bratislav\u011b. D\u00edky  modern\u00ed l\u00e9\u010db\u011b lumasiranem, prepar\u00e1tem sni\u017euj\u00edc\u00edm efektivn\u011b mo\u010dov\u00e9 koncentrace oxal\u00e1tu, bylo mo\u017en\u00e9 prov\u00e9st izolovanou transplantaci ledviny na rozd\u00edl od du\u00e1ln\u00ed transplantace ledviny a jater, d\u0159\u00edve jedin\u00e9, av\u0161ak rizikov\u011bj\u0161\u00ed  l\u00e9\u010debn\u00e9 metody. <\/p>\n\n\n\n

Transplantaci ledviny, kterou provedl t\u00fdm pod veden\u00edm prim. MUDr. Jana Burkerta, Ph.D., p\u0159edch\u00e1zel kardiochirurgick\u00fd v\u00fdkon v D\u011btsk\u00e9m kardiocentru FNM  –  n\u00e1hrada ztrombotizovan\u00e9 horn\u00ed dut\u00e9 \u017e\u00edly. N\u00e1ro\u010dn\u00e1 p\u0159\u00edprava zahrnovala rovn\u011b\u017e konzultace s odborn\u00edky v zahrani\u010d\u00ed, kde ji\u017e izolovan\u00e1 transplantace ledviny u pacient\u016f s t\u00edmto onemocn\u011bn\u00edm prob\u011bhla, a pe\u010dliv\u011b napl\u00e1novanou poopera\u010dn\u00ed p\u00e9\u010di.  V sou\u010dasn\u00e9 dob\u011b se o d\u00edvku  staraj\u00ed sloven\u0161t\u00ed nefrologov\u00e9 a je napl\u00e1nov\u00e1na ambulantn\u00ed kontrola na d\u011btsk\u00e9 nefrologii FNM.<\/p>\n\n\n\n

Aktu\u00e1ln\u00ed v\u00fdborn\u00fd stav pacientky je v\u00fdsledkem \u00fasp\u011b\u0161n\u00e9 spolupr\u00e1ce d\u011btsk\u00fdch nefrolog\u016f v \u010cesk\u00e9 republice a na Slovensku, \u00fazk\u00e9 sou\u010dinnosti s dal\u0161\u00edmi specialisty a \u0161pi\u010dkov\u00e9 l\u00e9ka\u0159sk\u00e9 p\u00e9\u010de.<\/p>\n\n\n\n

\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0MUDr. Eva \u00a0Flachsov\u00e1, Ph.D.<\/p>\n\n\n\n

Kongres ESPN\u00a0 ve Vilniusu\u00a0<\/strong><\/strong><\/h5>\n\n\n\n

Ve dnech 26. z\u00e1\u0159\u00ed a\u017e 1. \u0159\u00edjna 2023 se v litevsk\u00e9 metropoli Vilniusu konal v\u00fdro\u010dn\u00ed 55. kongres Evropsk\u00e9 spole\u010dnosti d\u011btsk\u00e9 nefrologie (ESPN \u2013 European Society of Paediatric Nephrology). Za \u010ceskou republiku se akce z\u00fa\u010dastnili pan\u00ed p\u0159ednostka doc. Sk\u00e1lov\u00e1 (FN Hradec Kr\u00e1lov\u00e9), d\u00e1le l\u00e9ka\u0159i a l\u00e9ka\u0159ky z FN Motol (doc. Zieg, MUDr. Flachsov\u00e1 a MUDr. \u0160v\u00e1bov\u00e1), FN Brno (MUDr. \u0160tarha, MUDr. Pape\u017e) a FN Ostrava (doc. \u0160ul\u00e1kov\u00e1, prof. Seeman, p\u016fsob\u00ed i ve FN Motol). Kongres nav\u0161t\u00edvilo p\u0159es 900 \u00fa\u010dastn\u00edk\u016f z v\u00edce ne\u017e 70 zem\u00ed. V r\u00e1mci kongresu vystoupili i \u00fa\u010dastn\u00edci z USA \u010di Ji\u017en\u00ed Koreje.<\/p>\n\n\n\n

Pestr\u00fd odborn\u00fd program obs\u00e1hl celou \u0161k\u00e1lu t\u00e9mat z d\u011btsk\u00e9 nefrologie (od vrozen\u00fdch vad mo\u010dov\u00e9ho traktu p\u0159es glomerulonefritidy po novinky v managementu dialyzovan\u00e9ho pacienta a v\u00fdzvy u d\u011bt\u00ed po transplantaci ledviny). Ned\u00edlnou sou\u010d\u00e1st\u00ed byly prezentace klinick\u00fdch studi\u00ed, testuj\u00edc\u00edch \u00fa\u010dinnost nov\u00fdch l\u00e9\u010div v terapii chronick\u00fdch onemocn\u011bn\u00ed ledvin.<\/p>\n\n\n\n

Erudovanou p\u0159edn\u00e1\u0161kou o hypertenzi  u novorozenc\u016f p\u0159isp\u011bl do programu prof. Seeman. Doc.Sk\u00e1lov\u00e1 prezentovala  kazuistiku t\u00fdkaj\u00edc\u00ed se geneticky podm\u00edn\u011bn\u00e9ho nefrotick\u00e9ho syndromu, doc. Zieg obs\u00e1hl zku\u0161enosti s Schimkeho imunoose\u00e1ln\u00ed dyspl\u00e1zi\u00ed na souboru pacient\u016f z FN Motol a MUDr. \u0160v\u00e1bov\u00e1 p\u0159ednesla kazuistiku, v n\u00ed\u017e pouk\u00e1zala na propojen\u00ed d\u011btsk\u00e9 nefrologie s gastroenterologi\u00ed:  prezentovala p\u0159\u00edpad tubulointerstici\u00e1ln\u00ed nefritidy u pacienta se z\u00e1n\u011btliv\u00fdm st\u0159evn\u00edm onemocn\u011bn\u00edm.<\/p>\n\n\n\n

 Kongres se nesl v slavnostn\u00ed  p\u0159\u00e1telsk\u00e9 atmosf\u00e9\u0159e. Organiz\u00e1tor\u016fm pat\u0159\u00ed velk\u00fd d\u00edk za skv\u011ble p\u0159ipraven\u00fd odborn\u00fd i spole\u010densk\u00fd program.  Ji\u017e te\u010f se t\u011b\u0161\u00edme na p\u0159\u00ed\u0161t\u00ed kongres v z\u00e1\u0159\u00ed 2024 ve \u0161pan\u011blsk\u00e9 Valencii.<\/p>\n\n\n\n

\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0MUDr. Eva \u0160v\u00e1bov\u00e1<\/p>\n\n\n\n

\"espn
\u010ce\u0161t\u00ed \u00fa\u010dastn\u00edci na kongresu ESPN 2023<\/figcaption><\/figure><\/div>\n\n\n\n
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