{"id":7458,"date":"2026-05-21T12:56:16","date_gmt":"2026-05-21T10:56:16","guid":{"rendered":"https:\/\/www.pediatrics.cz\/?p=7458"},"modified":"2026-05-21T12:56:30","modified_gmt":"2026-05-21T10:56:30","slug":"vzacna-onemocneni-mezinarodni-spoluprace-pomaha-zkracovat-cestu-k-diagnoze-i-lecbe","status":"publish","type":"post","link":"https:\/\/www.pediatrics.cz\/vzacna-onemocneni-mezinarodni-spoluprace-pomaha-zkracovat-cestu-k-diagnoze-i-lecbe\/","title":{"rendered":"Vz\u00e1cn\u00e1 onemocn\u011bn\u00ed: mezin\u00e1rodn\u00ed spolupr\u00e1ce pom\u00e1h\u00e1 zkracovat cestu k diagn\u00f3ze i l\u00e9\u010db\u011b"},"content":{"rendered":"\n

Vz\u00e1cn\u00e1 onemocn\u011bn\u00ed se v \u010cesk\u00e9 republice t\u00fdkaj\u00ed p\u0159ibli\u017en\u011b p\u016fl milionu lid\u00ed. U \u0159ady pacient\u016f p\u0159itom hraje z\u00e1sadn\u00ed roli \u010das \u2013 cesta ke spr\u00e1vn\u00e9 diagn\u00f3ze a c\u00edlen\u00e9 l\u00e9\u010db\u011b b\u00fdv\u00e1 \u010dasto dlouh\u00e1 a n\u00e1ro\u010dn\u00e1.<\/p>\n\n\n\n

Pr\u00e1v\u011b v\u00fdznamu specializovan\u00e9 p\u00e9\u010de, mezin\u00e1rodn\u00ed spolupr\u00e1ce a p\u0159\u00ednos\u016fm Evropsk\u00fdch referen\u010dn\u00edch s\u00edt\u00ed (ERN) pro pacienty i zdravotn\u00edky byla v\u011bnov\u00e1na tiskov\u00e1 konference, kter\u00e1 prob\u011bhla dne 13. kv\u011btna 2026 ve V\u0161eobecn\u00e9 fakultn\u00ed nemocnici v Praze (VFN). Odborn\u00edci zde p\u0159edstavili v\u00fdznam specializovan\u00fdch center p\u0159i diagnostice a l\u00e9\u010db\u011b vz\u00e1cn\u00fdch onemocn\u011bn\u00ed a mo\u017enosti spolupr\u00e1ce nap\u0159\u00ed\u010d evropsk\u00fdmi pracovi\u0161ti.<\/p>\n\n\n\n

V\u00fdznamnou roli v t\u00e9to oblasti hraje tak\u00e9 revmatologie. \u0158ada syst\u00e9mov\u00fdch autoimunitn\u00edch a autoinflamatorn\u00edch onemocn\u011bn\u00ed pat\u0159\u00ed mezi vz\u00e1cn\u00e9 diagn\u00f3zy a pacienti \u010dasto proch\u00e1zej\u00ed dlouhou cestou, ne\u017e se dostanou ke spr\u00e1vn\u00e9 diagn\u00f3ze a odpov\u00eddaj\u00edc\u00ed l\u00e9\u010db\u011b.<\/p>\n\n\n\n

Specializovan\u00e1 centra VFN a 1. LF UK zapojen\u00e1 do Evropsk\u00fdch referen\u010dn\u00edch s\u00edt\u00ed pom\u00e1haj\u00ed tuto dobu zkracovat. D\u00edky mezin\u00e1rodn\u00ed spolupr\u00e1ci mohou l\u00e9ka\u0159i konzultovat slo\u017eit\u00e9 p\u0159\u00edpady se zahrani\u010dn\u00edmi odborn\u00edky a pacienti z\u00edsk\u00e1vaj\u00ed p\u0159\u00edstup k modern\u00edm diagnostick\u00fdm a l\u00e9\u010debn\u00fdm mo\u017enostem.<\/p>\n\n\n\n

V\u00fdznamn\u00e9 m\u00edsto zde zauj\u00edm\u00e1 tak\u00e9 p\u00e9\u010de o d\u011btsk\u00e9 pacienty se vz\u00e1cn\u00fdmi revmatick\u00fdmi onemocn\u011bn\u00edmi, syst\u00e9mov\u00fdmi vaskulitidami nebo vz\u00e1cn\u00fdmi autoimunitn\u00edmi a autoinflamatorn\u00edmi chorobami. VFN je jedin\u00fdm \u010desk\u00fdm pracovi\u0161t\u011bm zapojen\u00fdm do s\u00edt\u011b ERN RITA s evropskou certifikac\u00ed pro d\u011btsk\u00e1 revmatick\u00e1 onemocn\u011bn\u00ed a vybran\u00e9 poruchy imunity.<\/p>\n\n\n\n

Sou\u010d\u00e1st\u00ed tiskov\u00e9 konference bylo tak\u00e9 vystoupen\u00ed prof. Pavly Dole\u017ealov\u00e9, CSc., vedouc\u00ed l\u00e9ka\u0159ky Centra d\u011btsk\u00e9 revmatologie a autoinflamatorn\u00edch onemocn\u011bn\u00ed a \u010dlenky veden\u00ed evropsk\u00e9 s\u00edt\u011b ERN RITA. P\u0159edstavila konkr\u00e9tn\u00ed p\u0159\u00edpad d\u011btsk\u00e9 pacientky s autoinflamatorn\u00edm onemocn\u011bn\u00edm. Samotn\u00e1 pacientka se setk\u00e1n\u00ed rovn\u011b\u017e z\u00fa\u010dastnila a sd\u00edlela svou zku\u0161enost s cestou k diagn\u00f3ze i n\u00e1slednou l\u00e9\u010dbou.<\/p>\n\n\n\n

Propojov\u00e1n\u00ed odbornost\u00ed, sd\u00edlen\u00ed zku\u0161enost\u00ed a multidisciplin\u00e1rn\u00ed spolupr\u00e1ce dnes p\u0159edstavuj\u00ed d\u016fle\u017eitou cestu ke zlep\u0161en\u00ed p\u00e9\u010de o pacienty se vz\u00e1cn\u00fdmi onemocn\u011bn\u00edmi a ke zkr\u00e1cen\u00ed \u010dasu pot\u0159ebn\u00e9ho k diagnostice i zah\u00e1jen\u00ed l\u00e9\u010dby.<\/p>\n\n\n\n

Kompletn\u00ed tiskovou zpr\u00e1vu naleznete zde<\/a>. <\/p>\n\n\n\n

<\/div>\n\n\n\n
\"VFN\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

Vz\u00e1cn\u00e1 onemocn\u011bn\u00ed se v \u010cesk\u00e9 republice t\u00fdkaj\u00ed p\u0159ibli\u017en\u011b p\u016fl milionu lid\u00ed. U \u0159ady pacient\u016f p\u0159itom hraje z\u00e1sadn\u00ed roli […]<\/p>\n","protected":false},"author":4,"featured_media":7460,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":true,"kia_subtitle":""},"categories":[1],"tags":[],"class_list":["post-7458","post","type-post","status-publish","has-post-thumbnail","hentry","category-nezarazene"],"acf":[],"lang":"cs","translations":{"cs":7458},"pll_sync_post":[],"_links":{"self":[{"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/posts\/7458","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/comments?post=7458"}],"version-history":[{"count":0,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/posts\/7458\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/media\/7460"}],"wp:attachment":[{"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/media?parent=7458"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/categories?post=7458"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.pediatrics.cz\/api\/wp\/v2\/tags?post=7458"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}